Tuesday, June 1, 2010

A New Direction

Hello precious readers!

So, I'm taking the plunge in my new Celiac direction and will not longer be writing on my Costochondritis blog...which is so weird. For almost a year, this blog and you all have been such sweet friends to me on many dark days.

I will leave this blog up for many years to come for all you Costochondritis sufferers that are living with this terrible condition both now and in the future. To those who I've walked with for this past year, thank you for your support, your love, and your encouragement. To those who are currently being thrown into the pain of this disease and seeking answers, you are not alone. The pain you feel is real, it's not invisible, and it's debilitating in more than just the physical realm. So please let me validate you, and send you many hugs of support.

That being said, I do want to say this. This past year I've learned more about Costochondritis than I could ever have imagined. And although it's a nasty and quite rude condition, hear me when I say that if you have this condition long term and it will not go away....do not, I beg you, continue to seek pain killers, seek the source of your pain. Look into auto-immune disorders and other weird conditions. I don't say this to scare anyone, I say it to give you hope. Don't take this pain at face value...it's a chameleon. Look past the pain and go after the reason for it. Dig, Dig, Dig....and don't give up. It took me almost 4 years with this chest pain that has taken my breathe away and stolen so many beautiful moments from me to finally find the source, my Celiac. I know that I'm healing and moving on. But I promise you, there is a reason for your pain. And when you are tired and weak, take some time to pray, recover, relax, and then continue to be your own advocate, no matter how crazy other people or doctors think you are, don't give up. The day I found out the reason behind my pain...my world changed in a single instant. And I just know in my heart that yours can too. That fact that you are on this blog, seeking answers is awesome, and I just know that those who don't give up along with the grace and direction of God can have that life changing moment too, where it all becomes clear, the clouds part, and the violent storm that has engulfed your life can be a memory of the past.

As per me, I know the road ahead will be slow going, but I'm no idiot, I know how blessed I am to know what's going on in my body. And I thank God for that every day. I know this next year will be a year or 2 of healing, of trying to get my body back to where it can handle way more than it can now. So for now, I'm going to take one day at a time, start recording music in my home town since I can't travel to NYC, and update my Celiac blog. I don't know what tomorrow will bring. But today, that's all I got. And I'm content with that... peaceful...grateful.

Love to you all,
Lucy

11 comments:

  1. Thank you so much for all you have shared, you have been and continue to be a blessing to many.

    I am so happy for you for your new direction, hard to put this "happy" into meaningful words.

    Blessings to you,
    Mychelle

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  2. You are so sweet, thank you so much Mychelle! I so appreciate all your support and comments. Please visit me from time to time and let me know how you are doing!!
    Hugs,
    Lucy

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  3. Hello Lucy,

    This is part of a post I wrote to yahoo health group for costochondritis. Just thought it would be good to have it on this post too.

    I am in week 5 eating only foods I do not have any intolerances too and for three weeks now I have not had any spikes and I am sleeping more!!!! This is huge for me after this past year.
    From everything I have read and prayed about food can really work havoc with our systems. PLEASE EVERYONE WITH COSTO PRAY ABOUT THIS FOR YOU, PAY ATTENTION TO HOW YOUR BODY AND SYMPTOMS REACT WHEN YOU EAT AND DRINK.
    I really didn't notice until you suggested paying attention to the foods and the feelings afterwards. Even then I really didn't think this was such a problem. Nothing I have done to date besides the food changes has positively alterated my pain, symptoms, sleeping, movements, etc. I am very encouraged that for three weeks now I have not gotten worse, it seems as if I have arrested this to my current state, which is not healed but way more liveable then the spikes every few days.
    Thank you again Lucy.
    May the Lord lead & bless you, Mychelle

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  4. Thanks so much for sharing that!! You rock for listening to your body!!! YAY! Hope you continue to get better!
    Lucy

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  5. Hello Lucy,

    Is there a place at the celiac diva site to write you?
    How are your symptoms? Are you feeling any better? How about chest pain? Heaviness? Breathing?
    I saw you wearing what looks like a heavy chain necklace today episode 14. Wow, I can not wear any necklaces. I was excited for you, yet maybe you didn't loose that choice?
    Have you heard from any of your other followers/e-mail friends? How are they doing?
    I am still on the same course, nothing new and still no spikes, yeah!!! Great soreness when I do "too much" of course. If I could just figure all the "too much's" I could try and avoid them or spread them out anyhow.
    To God alone be the glory,
    Mychelle

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  6. Hi Lucy. Just checking in. Cannot find your celiac blog. Link says blog is not found. Can you direct me?

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  7. Just posted a new post! Miss you both!!!! How are you both doing?!

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  8. Wish we could talk. everything that you spoke about it exactly with my grandmother is going through I wish that I could help her costal chondritis has bothered her for 17 years now.
    and I'm helping her everyday trying my best to help her figure it out and she's not internet savvy at all in fact he has never gone on the internet so...i dont know.

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  9. Wish we could talk. everything that you spoke about it exactly with my grandmother is going through I wish that I could help her costal chondritis has bothered her for 17 years now.
    and I'm helping her everyday trying my best to help her figure it out and she's not internet savvy at all in fact he has never gone on the internet so...i dont know.

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  10. Hi Ms. Lucy,
    I want to thank you for this website you have created. I hope that you sre doing/feeling alot better! I left a couple blogs this morning early after 3:00 and another after 4:30. I pray that you are in better health. You have been a blessing to all you come in contact with. Thank you for being a blessing to me and many others. :)

    Take care and I look forward to getting feedback from you and others on my post.

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